Q: I was diagnosed with Young Onset Alzheimer’s. I’m only 48-years-old. Can this be correct? What should I expect?
A: Although the diagnosis was probably very difficult and shocking, you are not alone. Young Onset Alzheimer’s, which accounts for up to 10 percent of Alzheimer’s cases, affects people under the age of 65 - some in their 30s, 40s and 50s. The most important thing you need is support from your family, friends and professionals who have been trained in the field of Alzheimer’s. Understand that you have a brain disease and none of this is your fault. Your life is not over. You can live a meaningful, productive life by engaging in activities and interests you can still enjoy. Remember:
You are still the same person.
Everyone is affected differently. Symptoms vary.
This illness was not acquired by any action or inaction on your part.
You will have good and bad days.
There are people who understand and can help.
It’s common to feel overwhelmed and socially withdrawn when first diagnosed. Consider joining a support group with others diagnosed with dementia who are experiencing similar feelings. For more information about Support Groups organized by the Alzheimer’s Association, New York City Chapter, call 646-744-2900 or visit www.alznyc.org.
You should also get your legal and financial matters in order. You may still be able to manage them, but will need to start relying on others to act in your best interest. Ask the following:
Who will manage my financial affairs?
Who will make medical decisions on my behalf?
Who will be a “back up” should my primary caregiver become unable to act?
If you do not have a primary caregiver yet, consider having someone you trust attend one of the New York City Chapter’s free introductory Legal and Financial Seminars.
These decisions are not easy. The more you plan now, the easier it will be for your family to help you live your best life.
For help with this or any other dementia situation or for a list of our services visit our website at www.alznyc.org or call our 24-hour helpline 1-800 272-3900. There is always a caring and informed person at the other end of the line to help you.
- The Alzheimer’s Association, New York City Chapter
If you have a question for the Alzheimer’s Association, New York City Chapter, please send it to Jed Levine at expert@alznyc.org
